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Frequently Asked Questions

Fancy FAQ Section
What is Dementia Hub UK?
Dementia Hub UK is a free online resource and community dedicated to providing help, advice, guidance, and support for everyone affected by all types of dementia. It aggregates the latest global research, news, treatments, coping strategies, and personal stories to educate, offer hope, and ensure no one faces dementia alone.
Is membership free?
Yes, basic membership is completely free. You can register in just a minute to access the full site, including forums and community features.
Are there any paid membership options?
There is an optional "Treat us to a coffee" level for £3 per month, which supports the site and helps us increase our reach (running the platform is certainly not free for us). However, we know not everyone can afford £3 a month so all core content and features remain available with the free membership.
How do I sign up as a new member?
Simply go to the homepage or membership page and click to register. It takes about a minute to create an account — no payment details are needed for the free level.
What kind of content can I find on the site?
You'll find sections on the latest global dementia news, drugs and treatments (including trials), symptoms and early diagnosis, coping strategies, herbal and natural remedies, statistics, legal aspects, charity updates, brain training games, and more.
Is there a forum for members?
Yes, there are friendly forums where you can share experiences, ask for advice, offer support, and connect with others on similar journeys. There are plenty of off-topic discussions also.
Do I need to register to use the forum?
Yes, registration (free) is required to post, reply, or fully participate in the forums for privacy and community safety.
Is the advice on the forum from medical professionals?
Generally no, the forum is peer-led by members sharing personal experiences although from time to time there maybe input from medical professionals. However, we do not vouch for any members credentials and the Forum is not a substitute for professional medical advice — always consult your GP or a qualified expert for health decisions.
What types of dementia does the site cover?
The site covers all major types, including Alzheimer's disease, vascular dementia, Lewy body dementia, frontotemporal dementia, mixed dementia, and more.
Where does the site get its information from?
Information is aggregated from reputable global sources, including research institutes, the NHS, Alzheimer's Society, Dementia UK, and other trusted organisations.
Can I read about the latest dementia drugs and clinical trials?
Yes, there's a dedicated section on current treatments, approved drugs, and ongoing trials worldwide, with updates as new information becomes available.
Are there resources for carers and family members?
Absolutely — Dementia Hub offers coping strategies, support group listings, legal advice, and forum areas tailored for carers, families, and those living with dementia.
Does the site have brain training or fitness activities?
Yes, the "Brain Fit" section includes challenges, games and exercises to promote mental sharpness and overall brain health. These are being expanded regularly.
Can I find information on natural or herbal remedies?
Yes, there's a detailed section exploring herbal sciences and natural approaches being researched for dementia support. Many studies have shown great potential in this area and we are keen to share these with you.
Are there local support groups listed?
The site includes listings for UK support groups, events, and ways to connect with others in your area.
How often is the content updated?
News, research, and trial updates are added regularly to keep everything current, often drawing from the latest global developments.
Is the site only for people in the UK?
While it has a strong UK focus (e.g., NHS info and local groups), the resources, research, and forums are useful for anyone worldwide affected by dementia. We are working on a translation option, both written and audio.
Can I share my own story or experiences?
Yes, once registered, you can post in the forums or contribute through community features to share stories and support others.
Is my personal information safe on the site?
The site takes privacy seriously—registration details are used only for community access, and forums encourage respectful, anonymous sharing where needed. We are registered with the ICO and are working to ensuring we comply with all aspects of the Online Safety Act.
Who runs Dementia Hub UK?
Me I guess. Dementia Hub is a fully independent hub created to centralise reliable dementia information and build a supportive online community, drawing on expert sources without being directly affiliated with any single charity or pharma - this allows us to say it as it is without fear or favour.
Can I stay anonymous on the forum?
Absolutely. You choose your own username (it doesn't have to be your real name), and you decide how much personal information to share.
Is the community welcoming to new members?
Yes, very much so. Members are supportive and understanding. New posts are common, and people are quick to offer kind advice or just a listening ear.
Can I join if I’m newly diagnosed and feeling overwhelmed?
Many members joined for exactly that reason. The site and forums provide a gentle place to ask questions at your own pace and learn from others who have been through the early stages.
Can family members and carers join too?
Yes, everyone is welcome — people living with dementia, carers, family, friends, and professionals. There are dedicated forum areas for different perspectives.
Are there separate areas for different types of dementia?
Yes, both the site and the forums have their own sections for specific types (like Alzheimer’s, vascular, Lewy body) as well as general areas for anyone affected.
Can I access the site on my phone or tablet?
Yes, the site works well on mobiles, tablets, and computers. You can read and post from anywhere.
Is there a mobile app?
Not yet, but the website is fully mobile friendly and can be added to your home screen as an app-like icon for quick access. Maybe in time we will build the app, if it provides benefits to our members
How quickly are new research and trial updates added?
The team adds new developments as soon as reliable sources publish them, often within days, so you stay informed without searching multiple sites.
Can I suggest new topics or sections for the site?
Yes, member feedback is fully welcomed. You can message the admin or post suggestions in the forum.
Is the information on the site easy to understand?
Yes, everything is written in plain English with no jargon. We know it can be difficult when medical terms are explained so we ensure complex topics are as layman as possible.
Are there any success stories or positive experiences shared?
Yes, many members share hopeful stories, tips that worked for them, and moments of joy — positive moments always help in balancing the challenges.
Can I search the forums for specific topics?
Yes, there is a search function so you can quickly find discussions on symptoms, treatments, caring tips, or anything else.
What if I just want to read and not post?
That’s perfectly fine. Many members start by reading quietly before feeling ready to join in. There’s no pressure.
Is the site linked to any particular charity or organisation?
No, Dementia Hub is fully independent, which allows us to gather information from many trusted sources (NHS, Alzheimer’s Society, research bodies) without favouring one. We do allow you to support several different charities via our site but remain independent.
Can I share articles or forum posts with family who aren’t members?
Yes, most pages have share buttons, and you can send links to helpful threads or articles.
Are there any online events or live chats?
Occasionally, members organise informal meet-ups in the forum or share live event links. Watch the announcements section.
How do I report a concern or get help if needed?
There is a contact form and admin team who respond quickly and confidentially to any issues.
Will joining really make a difference to how I feel?
Many members say yes — having a safe place to ask questions, feel understood, and access up to date information reduces worry and helps them feel more in control. Knowing there is a platform who is chasing every last drop of information on your behalf always makes a difference.
Can I delete my account if I change my mind?
Yes, you can request account deletion at any time through your settings or by contacting the admin.
Are children or grandchildren of people with dementia welcome?
Yes, many younger family members join to learn how to support their loved ones and connect with others in similar situations.
Does the site cover end of life or advanced dementia topics sensitively?
Yes, there are dedicated, respectful areas for those topics with experienced members offering gentle support.
Can I help moderate or volunteer in any way?
Active, trusted members are sometimes invited to help moderate — it's a great way to give back.
Is there a dark mode for easier reading?
Your device or browser dark mode will usually work well with the site for comfortable viewing.
Can I print articles to share with doctors or family?
Yes, most pages have a print-friendly option.
Is there a section for questions about benefits or financial help?
Yes, members frequently discuss Attendance Allowance, PIP, council support, and more in the forums.
What’s the best reason to join today?
You’ll instantly gain access to a kind, knowledgeable community and a wealth of clear, up-to-date information — all for free, and all ready to help you feel less alone on your journey.
How do I change my notification settings?
Go to your account settings and choose which forums or topics you’d like email alerts for—or turn them off completely.
Are there any rules I need to know before posting?
Just be kind and respectful. Full guidelines are shown when you register and in the forum section.
Can I edit or delete my posts if I make a mistake?
Yes, you can edit or delete your own posts for a short time after posting.
Is there a private messaging system?
Yes, members can send private messages if they wish to talk one-to-one.
What if I forget my password?
Use the "Forgot password" link on the login page—it will email you a secure reset link immediately.