Frequently Asked Questions

Dementia Hub UK is a free online resource and community dedicated to providing help, advice, guidance, and support for everyone affected by all types of dementia. We bring together the latest global research, news, treatments, coping strategies, and personal stories to educate, offer hope, and ensure no one faces dementia alone.

Yes, membership is completely free. You can register in less than a minute to access the full site, including forums and community features.

Many supporters choose to help in funding the important work Dementia Hub does by keeping the site operational and up to date with all the latest news and research - running the platform unfortunately comes with costs, which we as developers pay out of our family budget! For those who want to help there is an optional "Treat us to a coffee" membership for £3 per month - not a lot we know, but it really helps supports the site and increase our reach to those who need us most. No pressure to choose this, that choice is yours to make.

Simply go to the homepage or membership page and click to register either as a free member or £3 a month if you want to help us grow and develop the site. It takes about a minute to create an account — no payment details are needed for the free level.

Yes, each page, including news articles, has its own audio version for those who would prefer to listen to the content rather than read. This is a recent feature addition, funded by those £3 coffee's you generously help us with, so please bear with us whilst we get everything updated!

You'll find sections on the latest global dementia news, drugs and treatments (including trials), symptoms and early diagnosis, coping strategies, herbal and natural remedies, statistics, legal aspects, charity updates, brain training games, and a lot more - we are adding resources as quickly as we can.

Yes, there are friendly forums where you can share experiences, ask for advice, offer support, and connect with others on similar journeys. There are plenty of off-topic discussions also. Presently, these are switched off as we are ensuring we comply with the Online Safety Act for the protection of our members - we expect the Forums to be active again sometime in March 2026.

Yes, registration (free) is required to post, reply, or fully participate in the forums for privacy and community safety.

Generally no, the forum is peer-led by members sharing personal experiences although from time to time there maybe input from medical professionals. However, Dementia Hub does not vouch for any members' credentials, their opinions or their recommendations, the Forum is not a substitute for professional medical advice — always consult your GP or a qualified expert for health decisions.

The site covers all major types, including Alzheimer's disease, vascular dementia, Lewy body dementia, frontotemporal dementia, mixed dementia, and more.

Information is aggregated from reputable global sources, including research institutes, the NHS, Alzheimer's Society, Dementia UK, and other trusted organisations.

Yes, there's a dedicated section on current treatments, approved drugs, and ongoing trials worldwide, with updates as new information becomes available.

Absolutely, carers are often affected just as much (if not more) than the person with Dementia — one of the most important things we do at Dementia Hub is to offer practical coping strategies, support group listings, legal advice, and forum areas tailored for carers, their families, and those living with dementia. Not all superhero's wear capes!

Yes, the "Brain Fit" section includes challenges, games and exercises to promote mental sharpness and overall brain health. These are being expanded regularly and are fun, free and designed to keep you on your toes.

Yes, there's a detailed section exploring herbal sciences and the natural approaches being researched for dementia support. Many studies on herbs, spices and natural remedies have shown great potential and we are very keen to share these with you.

We will be developing an area of the site that will cover listings for UK support groups, events, and ways to connect with others in your area. Stay tooned!

News, research, clinical trial updates and other areas of the site are added / updated regularly to keep everything as current as possible.

While it has a strong UK focus (e.g., NHS info and local groups), the resources, research, and forums are useful for anyone worldwide affected by dementia. We are working on a translation option, both written and audio.

Yes, once registered, you can post in the forums or contribute through community features to share stories and support others.

The site takes privacy seriously — registration details are used only for community access, and forums encourage respectful, anonymous sharing where needed. You have control over what you allow with respect to data protection and privacy - even down to the free newsletters. We are registered with the ICO and are working to ensuring we comply with all aspects of the Online Safety Act.

Me I guess - names at the bottom! Dementia Hub is a fully independent hub created to centralise reliable dementia information and build a supportive online community, drawing on expert sources without being directly affiliated with any single charity or pharma - this allows us to report without fear or favour.

Absolutely. You choose your own username (it doesn't have to be your real name), and you decide how much personal information to share.

Many members often join for exactly that reason. The site and forums provide a gentle place to ask questions at your own pace and learn from others who have been through the early stages. It is also a great resource for those who have family members with Dementia.

Yes, everyone is welcome — people living with dementia, carers, family, friends, and professionals. There are dedicated forum areas for different perspectives.

Yes, both the site and the forums have their own sections for specific types (like Alzheimer’s, vascular, Lewy body) as well as general areas for anyone affected.

Yes, the site works well on mobiles, tablets, and computers. You can read and post from anywhere.

Not yet, but the website is fully mobile friendly and can be added to your home screen as an app-like icon for quick access. Maybe in time we will build the app, if it provides benefits to our members

The team adds new developments as soon as reliable sources publish them, often within days, so you stay informed without searching multiple sites.

Yes, member feedback is fully welcomed. You can message the admin or post suggestions in the forum.

Yes, everything is written in plain English with no jargon. We know it can be difficult when medical terms are explained so we ensure complex topics are as layman as possible.

Yes, many members share hopeful stories, tips that worked for them, and moments of joy — positive moments always help in balancing the challenges.

Yes, there is a search function so you can quickly find discussions on symptoms, treatments, caring tips, or anything else.

That’s perfectly fine. Many members start by reading quietly before feeling ready to join in. There’s no pressure.

No, Dementia Hub is fully independent, which allows us to gather information from many trusted sources (NHS, Alzheimer’s Society, research bodies) without favouring one. We do allow you to support several different charities via our site but we choose to remain independent.

Yes, most pages have share buttons, and you can send links to helpful threads or articles.

Occasionally, members organise informal meet-ups in the forum or share live event links. Watch the announcements section.

There is a contact form and admin team who respond quickly and confidentially to any issues.

Many members say yes — having a safe place to ask questions, feel understood, and access up to date information reduces worry and helps them feel more in control. Knowing there is a platform who is chasing every last drop of information on your behalf always makes a difference.

Yes, you can request account deletion at any time through your settings or by contacting the admin.

Yes, many younger family members join to learn how to support their loved ones and connect with others in similar situations. The topics that are discussed on Dementia Hub can be emotional and difficult regardless of age, but we hope that by providing information in a clear and easy to understand manner will allow for acceptance and deliver strength to those who need it.

Yes, there are dedicated, respectful areas for those topics with experienced members offering gentle and respectful support.

Active members are always welcome to help us and there are many ways in which you can contribute to Dementia Hub — it's a great way to give back. Reach out to us via the contact us form and one of the team will be in contact.

Your device or browser dark mode will usually work well with the site for comfortable viewing.

Yes, most pages have a print-friendly option.

Yes, members frequently discuss Attendance Allowance, PIP, council support, and more in the forums - understanding finances and your options are very important and are one of the biggest causes of stress.

Because we care! You’ll instantly gain access to a kind, knowledgeable community and a wealth of clear, up to date information, and Because we care it will become clear that we are here to help you feel less alone on this journey.

Go to your account settings and choose which forums or topics you’d like email alerts for—or turn them off completely.

Just be kind and respectful - emotions can run high but we are one community, together. Full guidelines are shown when you register and in the forum section.

Yes, you can edit or delete your own posts for a short time after posting.

Use the "Forgot password" link on the login page—it will email you a secure reset link immediately.